Data Sharing Register 2024
|
Project name |
Organisation requesting the data |
Description |
Date of approval |
End date |
Data used |
Data type |
Where data is used |
|
Responding to National Patient Safety alerts for valproate and topiramate drugs |
Cheshire and Merseyside ICB |
Two National Patient Safety alerts mandated new measures for the use of valproate (a series of drugs used to manage epilepsy and bipolar disorder) and topiramate (a drug used to treat migraine symptoms). A dashboard has been developed for clinical specialists to identify patients who need medication reviews as a result of these changes. More information: |
5/3/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP and secondary care data |
Non identifiable |
ICB-wide |
|
Understanding the causes of diabetic lower limb amputations |
Mersey & West Lancashire Teaching Hospitals NHS Trust |
This study aims to prevent unnecessary lower limb amputations linked to diabetes. This is done by reviewing areas of best practice and where improvements can be made to provide consistently better outcomes. It started in response to an NHS Resolution study in June 2022 which reviewed clinical negligence claims for diabetes and lower limb complications, focusing on understanding the causes of above-the-ankle lower limb amputations. These amputations often start with ulceration and so are potentially preventable. More information: NHS Resolution. |
26/03/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP and Secondary care data |
Patient Identifiable |
St Helens |
|
Preventing violent crime |
Cheshire & Merseyside ICB |
Cheshire Police and NHS Cheshire and Merseyside are working together to reduce crime by analysing hospital attendances related to violence. Alerts are created that can then be followed up by the youth navigator team. More information: |
05/03/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP, secondary care, community, social care and mental health data |
Patient Identifiable |
ICB wide |
|
Home monitoring to avoid hospital admissions |
Merseycare NHS Foundation Trust |
Some patients with heart conditions and COPD can be monitored at home using specialist equipment. If their condition deteriorates, healthcare professionals are alerted to provide appropriate care. Population health management data is being used to target this remote monitoring for patients where it will have the greatest impact.
|
16/04/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data |
Patient Identifiable |
ICB wide |
|
Liverpool Care Coordinators |
Liverpool Place |
Care Coordinators support people with complex health conditions to stay out of hospital. Population health management data is used to proactively identify suitable patients in Liverpool for this service, rather than this having to be processed by GPs.
|
16/04/2024 |
Ongoing - annual review |
Liverpool GP, secondary care, community, social care and mental health data |
Patient Identifiable |
Liverpool |
|
PID Access for Sefton Care Coordinators |
Sefton Place |
Care Coordinators support people with complex health conditions to stay out of hospital. Population health management data is used to proactively identify suitable patients in Sefton for this service, rather than this having to be processed by GPs.
|
16/04/2024 |
Ongoing - annual review |
Sefton GP, secondary care, community, social care and mental health data |
Patient Identifiable |
Sefton |
|
Impact of COVD-19 on Breast Cancer |
Mersey & West Lancashire Teaching Hospitals NHS Trust |
A study analysing the impact of COVID-19 on patient outcomes of women diagnosed with breast cancer before, during and after the height of the pandemic across Cheshire and Merseyside. The plan is to analyse data to determine the impact of COVID-19 on patient delays to diagnosis and treatment, stage at diagnosis, treatment type and 1 year mortality from date of diagnosis for each of the three referral pathways (primary, secondary, NHS Breast Cancer Screening Programme) considering age, ethnicity and social economic status. The aim is to review how NHS Cheshire & Merseyside reacted to COVID-19, with results to be presented to local cancer services. |
14/02/2024 |
31/10/2027 |
Cheshire and Merseyside GP, secondary care and north west cancer waiting list data as well as national secondary care and mortalities data |
Non identifiable |
ICB wide |
|
Safe and Well hot spots analysis |
Cheshire & Merseyside ICB |
Cheshire and Mersey Fire and Rescue Services are working with NHS Cheshire and Merseyside to proactively visit homes most at risk of having an accidental fire. The data required for this is already in place, but GP practices are being asked to sign a data sharing agreement to support this work. Once that is complete a dashboard will be created, giving properties risk scores based on health and wellbeing factors in the NHS data. This score is calculated internally in the NHS. Nobody from the fire services will be given access to identifiable personal information. |
14/02/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data |
Non identifiable |
ICB wide |
|
Healthy Air for Healthy Lungs - Indoor Air Quality Improvement Project |
St Helens Borough Council, Warrington Borough Council |
St Helens Borough Council and Warrington Borough Council are working to improve indoor air quality.
Around 250 households in areas of deprivation will be given an indoor air quality monitor, have an indoor air quality assessment and receive health education and advice. This will be specifically targeted to households with children aged two to 10 years old that have an underlying respiratory illness, such as asthma.
This research is funded by a grant from the Department for Environment, Food and Rural Affairs and will work across six Air Quality Management Areas - four in St Helens and two in Warrington. |
25/06/2024 |
01/06/2025 |
St Helens and Warrington GP Data and National secondary care data |
Non identifiable |
St Helens and Warrington |
|
Cheshire West Care Coordinators |
Cheshire and Wirral Partnership NHS Foundation Trust |
Care coordinators, complex case managers and team managers will be given access to patient identifiable data for the practices they are embedded in. This enables proactive care for vulnerable patients and will be used in regular multi-disciplinary team meetings with practice staff.
|
20/04/2024 |
Ongoing - annual review |
Cheshire West GP, secondary care, community, social care and mental health data |
Patient Identifiable |
Cheshire West |
|
Diabetic Eye Screening - Wirral |
Cheshire and Wirral Partnership NHS Foundation Trust |
The Access to Enhanced Case Finding Dashboard is being used to support individuals with a learning disability to access diabetic eye screening. The screening team are able to access patient identifiable data to contact patients in a direct care setting, offering reasonable adjustments and easy read information as required. The team currently has access to similar data for hospitals.
|
20/04/2024 |
Ongoing - annual review |
Wirral GP data |
Patient Identifiable |
Wirral |
|
Beyond CYP Transformation Programme Population Health Planning |
Alder Hey Children's Hospital NHS Foundation Trust |
Child social care data has been requested to make it easier to support young people with complex needs in health and social care settings.
The Beyond programme, which is leading the Appropriate Places of Care work across Cheshire and Merseyside, has identified pressures on systems as a result of young people being placed in settings not suited to meeting their needs.
Programmes of system-wide change are working on addressing this, with access to this data being part of that to alleviate previous challenges of getting it from individual providers. |
20/04/2024 |
01/08/2026 |
Cheshire and Merseyside GP, mental health data and national secondary care data for children and young people only |
Non identifiable |
ICB wide |
|
Networked Data Lab (NDL) – Elective Waiting List management and Housing and Health study |
Cheshire and Merseyside ICB |
The Data into Action Programme and the Civic Health Innovation Lab at Liverpool University are working with the Health Foundation to evaluate the impact of elective surgery waiting lists and housing on health.
This is part of a national study collaborating with four other university data labs.
The insights will be used to identify local Cheshire and Merseyside interventions to support waiting list management and improve the health of patients waiting for surgery.
|
23/07/2024 |
31/03/2026 |
Cheshire and Merseyside GP, secondary care, social care data, and national secondary care, community, mental health, waiting list and mortality data |
Non identifiable |
ICB wide |
|
East Cheshire Care Community Coaches and Care Community Support Managers |
East Cheshire Place |
This project gives Care Community Coaches and Support Managers in Cheshire East access to a special dashboard that shows key patient information. This helps them support clinicians who work with High Intensity Users – people aged 18 or over who go to A&E very frequently (more than 5 times a month or more than 20 times a year). Having access to this information means the Coaches and Support Managers can provide helpful clinical insights and keep things running smoothly when clinical leads are unavailable. |
17/09/2024 |
Ongoing - annual review |
East Cheshire GP Data, National Secondary care data, mental health data, social care data and community data |
Patient Identifiable |
East Cheshire |
|
Chronic kidney disease prevention in primary care |
NHS England |
This project looks at the common characteristics of people who have chronic kidney disease, with the aim of finding ways to identify and treat the disease earlier. |
19/09/2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data, national secondary care data and waiting list data |
Non identifiable |
ICB wide |
|
Prevention of alcohol related harms |
Liverpool University Hospitals NHS Foundation Trust |
This project aims to improve the health of people affected by alcohol by analysing data on patients who are already experiencing alcohol-related harm, such as liver problems. By understanding this data, health services can better identify people who are at risk earlier and identify improved treatment plans to support them. |
19/09/2024 |
01/09/2026 |
Cheshire and Merseyside GP, secondary care, social care data, and national secondary care, community, mental health, waiting list and mortality data |
Non identifiable |
ICB wide |
|
Identifying patients who may benefit from an integrated care package |
St Helens South Primary Care Network |
This project aims to identify patients with complex needs who may benefit from more joined-up support. It focuses on people aged 18–30 who may be vulnerable, such as those living in deprived areas or already receiving social care. The project brings together information from GP records and other services to see whether these patients would benefit from a multi-agency meeting to plan an integrated package of care. Patients will be asked for their consent before any meeting takes place either via consultation, telephone, or written consent form. |
19/09/2024 |
Ongoing - annual review |
St Helens and Warrington GP Data and National secondary care data, community care and mental health data |
Patient Identifiable |
St Helens and Warrington |
|
Understanding inequalities in common mental health disorders |
Merseycare NHS Foundation Trust |
This project looks at how factors like age, ethnicity, and socioeconomic status affect people’s mental health. By understanding which groups are more likely to experience common mental health disorders, the project aims to help improve services and make sure support is more targeted, fair, and effective for everyone. |
19/09/2024 |
30/09/2028 |
Cheshire and Merseyside GP, community and mental health data, national secondary care, community, waiting list and mortality data |
Non identifiable |
ICB wide |
|
North Liverpool Primary Care Network access for COPD searches |
North Liverpool PCN |
This project will help healthcare teams in North Liverpool find patients with chronic obstructure pulmonary disease (COPD) who are current or past smokers and who have a 75% or higher risk of admission to hospital in the last 12 months. By identifying these patients early, they can be seen in order of priority and referred to the Community Respiratory Team before winter, when symptoms may worsen. Social prescribers will also use the Fuel Poverty Dashboard to identify patients who would benefit from social prescribing support. |
15/10/2024 |
Ongoing - annual review |
North Liverpool GP data |
Patient Identifiable |
North Liverpool PCN |
|
Complex Households Liverpool |
All Primary Care Networks in Liverpool Place |
Staff employed in GP practices will use the Complex Households dashboard to identify families who may need extra support. This will help connect them with early help services, such as education, health services, or school nursing, before problems become more serious. |
15/10/2024 |
Ongoing - annual review |
Liverpool GP data |
Patient Identifiable |
Liverpool Place |
|
Understanding access to healthcare for people with essential tremor |
The Walton Centre NHS Foundation Trust |
This project uses population health data to understand how different groups of people access treatment for essential tremor. The aim is to find out whether some groups face barriers to care, so that steps can be taken to ensure all patients have fair and equal access to treatment. |
12/11/2024 |
1/11/2025 |
Cheshire and Merseyside GP, secondary care and national secondary care data |
Non identifiable |
ICB wide |
|
St Helens Primary Care Network Advanced Nurse Practitioners |
St Helens PCN |
This project supports Advanced Nurse Practitioners in St Helens to use data from the Enhanced Case Finding Dashboard. It helps them identify groups of patients, such as people aged 18–30 who are known to social care and living in the most deprived areas, who may benefit from extra support. The information will be used to support proactive care of patients and to inform discussions at the Care Community Multidisciplinary Team meetings, enabling them to offer joined-up care from different services working together. |
12/11/2024 |
Ongoing - annual review |
St Helens GP Data, National Secondary care data, mental health data, social care data and community data |
Patient Identifiable |
St Helens |
|
Senior Occupational Therapists |
Central, South, North and Newton & Haydock PCNs |
Senior Occupational Therapists working across Central, South, North, and Newton & Haydock PCNs will use the Enhanced Case Finding Tool to help identify patients who may need extra support, for example, young adults known to social care and living in areas of high deprivation. This information will help multidisciplinary teams to enable proactive care for vulnerable and complex patients by offering them integrated, multi-agency care. |
12/11/2024 |
Ongoing - annual review |
St Helens Primary Care Networks GP, secondary care, community, socuak care and mental health data |
Patient Identifiable |
Central, South, North, Newtown & Haydock PCNs |
|
Crewe Care Co-ordinator |
Crewe Eagle Bridge PCN and Crewe GHR PCN |
This project gives the care co-ordinator for two Crewe Primary Care Networks (Crewe Eagle Bridge PCN and Crewe GHR PCN) access to the Enhanced Case Finding Dashboard. It forms part of the national Better Care Fund and aims to reduce the number of unplanned or crisis contacts by high intensity or frail users of health services over a 12-month period. By using data to identify people most at risk, the Care Co-ordinator can work with others to proactively manage their care, helping to avoid emergency hospital and long-term care admissions where possible. |
12/11/2024 |
Ongoing - annual review |
Crewe GP, Secondary Care, Community, Social Care and Mental Health Data |
Patient Identifiable |
Crewe Eagle Bridge Primary Care Network (Earnswood and Millcroft Medical Centres) and Crewe Grosvenor, Hungerford and Rope Primary Care Network (Grosvenor, Hungerford and Rope Green Medical Centres) |
|
Diabetes and Learning Difficulties Eye Screening Programme |
NEC Care (commissioned by the Central Merseyside Diabetic Eye Screening Programme) |
This project aims to improve uptake of the diabetic eye screening programme in Central Merseyside. It focuses on contacting patients who have not regularly attended appointments or who may need extra support because they have a learning disability. |
12/11/2024 |
Ongoing - annual review |
Central Merseyside GP data |
Patient Identifiable |
Central Merseyside covering Knowsley, Warrington, Halton and St Helens |
|
Primary Care 24 Complex Households |
Primary Care 24 |
This project is to use the Complex Households Dashboard to identify patients who may benefit from additional help |
12/11/2024 |
Ongoing - annual review |
GP data for Garston, Netherley, Maghull, Litherland Seaforth and Netherton, 15 Sefton Road, Great Crosby and Thornton, North Park and Hightown practices |
Patient Identifiable |
Garston, Netherley, Maghull, Litherland Seaforth and Netherton, 15 Sefton Road, Great Crosby and Thornton, North Park and Hightown |
|
Warrington and Halton Gold Standard Framework end of life data |
Cheshire and Merseyside ICB |
This project aims to improve palliative (end of life) care for patients in Warrington and Halton. It identifies patients with palliative care needs who either attend the Emergency Department or Same Day Emergency Care (SDEC), or who are admitted to hospital. Clinicians can then check whether these patients have a Personalised Care Plan (PCP) in place that reflects their care preferences. If a PCP is not already in place, and it’s clinically appropriate, staff can support the patient in creating one. |
10/12/2024 |
Ongoing - annual review |
Warrington and Halton GP data |
Patient Identifiable |
Warrington and Halton |
|
East Cheshire GP (Ashfields Primary Care Centre) |
Ashfields Primary Care Centre |
This scheme, part of the national Better Care Fund, aims to reduce the number of unplanned or crisis contacts by high intensity and frail users of health services over a 12-month period. By using data to identify patients most at risk, healthcare teams can proactively manage their care, helping to avoid emergency hospital and long-term care admissions where possible. |
10/12/2024 |
Ongoing - annual review |
Ashfield Primary Care Centre GP, Secondary Care, Community, Social Care and Mental Health Data |
Patient Identifiable |
East Cheshire GP (Ashfield Primary Care Centre) |