Data Sharing Register 2024
|
Project name |
Organisation requesting the data |
Description |
Year of approval |
End date |
Data used |
Data type |
Place where data is used |
|
Proactive, Preventative Care and targeted interventions |
Rural Alliance Primary Care Network (PCN), |
Projects that use population-level data and risk stratification tools to identify patients at risk of developing long-term conditions or deterioration in health. The aim is to enable proactive, preventative care and targeted interventions through primary care teams. |
From 2024 to 2026 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Cheshire West, Cheshire East, Liverpool, Sefton |
|
Complex Households / High Intensity Users |
West Knowsley PCN, Kirkby PCN Congleton & Holmes Chapel PCN, CHAW PCN, |
Projects focused on identifying individuals or households with complex health and social needs who frequently use urgent and emergency services. The goal is to coordinate multidisciplinary support, reduce avoidable hospital use, and improve outcomes through proactive care planning. |
From 2024 to 2027 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Knowsley, Cheshire East, Mid Cheshire, Sefton ,Liverpool, Halton, St Helens, Warrington, Knowsley, Liverpool, Wirral |
|
PCN-wide Care Models and delivery of the GP Network Contract Direct Enhanced Service Contract (DES) |
West Wirral PCN, South Warrington & Central East PCNs, South & Central Knowsley PCN, |
Projects supporting the delivery of Primary Care Network (PCN) contractual requirements under the Network Contract Directed Enhanced Service (DES). These initiatives use multiple population health dashboards to inform service planning, support integrated neighbourhood working, and improve access, care coordination, and health outcomes across the PCN population. |
From 2024 to 2028 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Wirral, Warrington, Knowsley, Liverpool, Cheshire West |
|
Frailty interventions |
West Wirral PCN, South Sefton PCN, |
Projects that identify patients living with frailty or at risk of frailty to provide earlier, coordinated support. The aim is to prevent deterioration, reduce hospital admissions, and support patients to remain independent through integrated health and community services
|
From 2024 to 2027 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Wirral, Sefton, Mid Cheshire, Cheshire East, Cheshire West |
|
Health Inequalities & Social determinants |
Healthier Neighbourhoods PCN, Anfield & Everton PCN, |
Projects targeting populations affected by wider determinants of health such as deprivation, housing conditions, or fuel poverty. These initiatives aim to reduce health inequalities by identifying vulnerable groups and delivering targeted preventative and social support interventions.
|
From 2024 to 2030 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Wirral, Liverpool, Cheshire West, St Helens and Warrington, Sefton, Halton |
|
Condition-specific Multidisciplinary teams (MDT) pilot |
Central Liverpool PCN |
A targeted pilot focusing on a specific clinical condition or pathway, using multidisciplinary teams (MDTs) to deliver coordinated, community-based care for high-risk patients and prevent avoidable hospital admissions.
|
From 2024 to 2030 |
Ongoing |
Cheshire and Merseyside data (primary, secondary, social care, community care and mental health) |
Identifiable |
Liverpool |
|
Responding to National Patient Safety alerts for valproate and topiramate drugs |
Cheshire & Merseyside ICB |
Two National Patient Safety alerts mandated new measures for the use of valproate (a series of drugs used to manage epilepsy and bipolar disorder) and topiramate (a drug used to treat migraine symptoms). A dashboard has been developed for clinical specialists to identify patients who need medication reviews as a result of these changes. More information: |
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP and Secondary care data |
Non identifiable |
Cheshire and Merseyside ICB |
|
Preventing violent crime |
Cheshire & Merseyside ICB |
Cheshire Police and NHS Cheshire and Merseyside are working together to reduce crime by analysing hospital attendances related to violence. Alerts are created that can then be followed up by the youth navigator team. More information: |
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP, secondary care, community, social care and mental health data |
Patient Identifiable |
Cheshire and Merseyside ICB |
|
Understanding the causes of diabetic lower limb amputations |
Mersey & West Lancashire Teaching Hospitals NHS Trust |
This study aims to prevent unnecessary lower limb amputations linked to diabetes. This is done by reviewing areas of best practice and where improvements can be made to provide consistently better outcomes. It started in response to an NHS Resolution study in June 2022 which reviewed clinical negligence claims for diabetes and lower limb complications, focusing on understanding the causes of above-the-ankle lower limb amputations. These amputations often start with ulceration and so are potentially preventable. |
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP and Secondary care data |
Patient Identifiable |
St Helens |
|
Home monitoring to avoid hospital admissions |
Merseycare NHS Foundation Trust |
Some patients with heart conditions and COPD can be monitored at home using specialist equipment. If their condition deteriorates, healthcare professionals are alerted to provide appropriate care. Population health management data is being used to target this remote monitoring for patients where it will have the greatest impact.
|
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data |
Patient Identifiable |
Cheshire and Merseyside ICB |
|
Diabetic Eye Screening- Wirral |
Cheshire and Wirral Partnership NHS Foundation Trust |
The Access to Enhanced Case Finding Dashboard is being used to support individuals with a learning disability to access diabetic eye screening. The screening team are able to access patient identifiable data to contact patients in a direct care setting, offering reasonable adjustments and easy read information as required. The team currently has access to similar data for hospitals.
|
2024 |
Ongoing - annual review |
Wirral GP data |
Patient Identifiable |
Wirral |
|
Data into Action Commissioning Intentions |
University of Liverpool |
Cheshire and Merseyside Integrated Care Board commissions the University of Liverpool to deliver the “DIA: ICB Commissioning Intentions” project, which uses linked, whole-population data to develop dashboards and analytics that support evidence-based commissioning. As a pilot to March 2026, it evaluates service impact, risk, and cost-effectiveness across areas such as waiting lists, telehealth, complex households, mental health, and medication optimisation.
|
2021 |
2027 |
Cheshire and Merseyside GP, secondary care, Social Care, community, mental health and ambulance data as well as national secondary care, community, GP and mental health data |
Non-identifiable |
Cheshire and Merseyside ICB |
|
"RESTORE - Research for Equitable SySTem RespOnse and Recovery" |
University of Liverpool |
RESTORE is a project that aims to find the best ways to identify people who may be at risk of developing multiple health conditions. It looks at how data can help local health and care services identify these individuals earlier and more accurately, so they can get the right support sooner.
|
2025 |
2027 |
Cheshire and Merseyside GP data, secondary care data, community data, social care data, mental health data, Covid 19 testing data Covid 19 vaccination data, Johns Hopkins risk stratification data and national secondary care, maternity, community, mortality and Covid shielding patient data |
Non-identifiable |
Cheshire and Merseyside ICB |
|
Impact of COVD-19 on Breast Cancer |
Mersey & West Lancashire Teaching Hospitals NHS Trust |
This study is looking at how the COVID-19 pandemic affected women diagnosed with breast cancer in Cheshire and Merseyside. It explores whether the pandemic led to delays in diagnosis or treatment, changes in the stage of cancer at diagnosis, the types of treatment people received, and mortality (survival) rates within a year of diagnosis for each of the three referral pathways (primary, secondary and NHS Breast Cancer Screening Programme). The study will compare these factors before, during, and after the height of the pandemic, taking into account people’s age, ethnicity, and socioeconomic status. The findings will help local cancer services understand the impact of COVID-19 and improve care in the future.
|
2024 |
2027 |
Cheshire and Merseyside GP, secondary care and north west cancer waiting list data as well as national secondary care and mortalities data |
Non-identifiable |
Cheshire and Merseyside ICB |
|
Fire Service Safe & Well hot spots analysis |
Cheshire & Merseyside ICB |
Cheshire and Mersey Fire and Rescue Services are working with NHS Cheshire and Merseyside to proactively visit homes most at risk of having an accidental fire. The data required for this is already in place, but GP practices are being asked to sign a data sharing agreement to support this work. Once that is complete a dashboard will be created, giving properties risk scores based on health and wellbeing factors in the NHS data. This score is calculated internally in the NHS. Nobody from the fire services will be given access to identifiable personal information. |
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data |
Non identifiable |
Cheshire and Merseyside ICB |
|
Beyond Children and Young People Transformation Programme Population Health Planning |
Alder Hey Children's Hospital NHS Foundation Trust |
Child social care data has been requested to make it easier to support young people with complex needs in health and social care settings. The Beyond programme, which is leading the Appropriate Places of Care work across Cheshire and Merseyside, has identified pressures on systems as a result of young people being placed in settings not suited to meeting their needs. Programmes of system-wide change are working on addressing this, with access to this data being part of that to alleviate previous challenges of getting it from individual providers.
|
2024 |
2026 |
Cheshire and Merseyside GP, mental health data and national secondary care data for children and young people only |
Non identifiable |
Cheshire and Merseyside ICB |
|
Healthy Air for Healthy Lungs - Indoor Air Quality Improvement Project |
St Helens Borough Council, Warrington Borough Council |
St Helens Borough Council and Warrington Borough Council are working to improve indoor air quality. Around 250 households in areas of deprivation will be given an indoor air quality monitor, have an indoor air quality assessment and receive health education and advice. This will be specifically targeted to households with children aged two to 10 years old that have an underlying respiratory illness, such as asthma. This research is funded by a grant from the Department for Environment, Food and Rural Affairs and will work across six Air Quality Management Areas - four in St Helens and two in Warrington.
|
2024 |
2025 |
St Helens and Warrington GP Data and National secondary care data |
Non identifiable |
St Helens and Warrington |
|
Networked Data Lab (NDL) – Elective Waiting List management and Housing and Health study |
Cheshire and Merseyside ICB |
The Data into Action Programme and the Civic Health Innovation Lab at Liverpool University are working with the Health Foundation to evaluate the impact of elective surgery waiting lists and housing on health. This is part of a national study collaborating with four other university data labs. The insights will be used to identify local Cheshire and Merseyside interventions to support waiting list management and improve the health of patients waiting for surgery.
|
2024 |
2026 |
Cheshire and Merseyside GP, secondary care, social care data, and national secondary care, community, mental health, waiting list and mortality data |
Non identifiable |
Cheshire and Merseyside ICB |
|
Chronic kidney disease prevention in primary care |
NHS England |
This project looks at the common characteristics of people who have chronic kidney disease, with the aim of finding ways to identify and treat the disease earlier.
|
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP data, national secondary care data and waiting list data |
Non-identifiable |
Cheshire and Merseyside ICB |
|
Prevention of alcohol related harms |
Liverpool University Hospitals NHS Foundation Trust |
This project aims to improve the health of people affected by alcohol by analysing data on patients who are already experiencing alcohol-related harm, such as liver problems. By understanding this data, health services can better identify people who are at risk earlier and identify improved treatment plans to support them.
|
2024 |
Ongoing - annual review |
Cheshire and Merseyside GP, secondary care, social care data, and national secondary care, community, mental health, waiting list and mortality data |
Non-identifiable |
Cheshire and Merseyside ICB |
|
Understanding inequalities in common mental health disorders |
Merseycare NHS Foundation Trust |
This project looks at how factors like age, ethnicity, and socioeconomic status affect people’s mental health. By understanding which groups are more likely to experience common mental health disorders, the project aims to help improve services and make sure support is more targeted, fair, and effective for everyone.
|
2024 |
2028 |
Cheshire and Merseyside GP, community and mental health data, national secondary care, community, waiting list and mortality data |
Non identifiable |
Cheshire and Merseyside ICB |
|
North Liverpool Primary Care Network access for COPD searches |
North Liverpool PCN |
This project will help healthcare teams in North Liverpool find patients with chronic obstructive pulmonary disease (COPD) who are current or past smokers and who have a 75% or higher risk of admission to hospital in the last 12 months. By identifying these patients early, they can be seen in order of priority and referred to the Community Respiratory Team before winter, when symptoms may worsen. Social prescribers will also use the Fuel Poverty Dashboard to identify patients who would benefit from social prescribing support.
|
2024 |
Ongoing - annual review |
North Liverpool GP data |
Patient Identifiable |
North Liverpool Primary Care Network |
|
Understanding access to healthcare for people with essential tremor |
The Walton Centre NHS Foundation Trust |
This project uses population health data to understand how different groups of people access treatment for essential tremor. The aim is to find out whether some groups face barriers to care, so that steps can be taken to ensure all patients have fair and equal access to treatment.
|
2024 |
2025 |
Cheshire and Merseyside GP, secondary care and national secondary care data |
Non - identifiable |
Cheshire and Merseyside ICB |
|
Diabetes and Learning Difficulties Eye Screening Programme |
NEC Care (commissioned by the Central Merseyside Diabetic Eye Screening Programme) |
This project aims to improve uptake of the diabetic eye screening programme in Central Merseyside. It focuses on contacting patients who have not regularly attended appointments or who may need extra support because they have a learning disability.
|
2024 |
Ongoing - annual review |
Central Merseyside GP data |
Patient Identifiable |
Central Merseyside covering Knowsley, Warrington, Halton and St Helens |
|
Warrington and Halton Gold Standard Framework end of life data |
Cheshire and Merseyside ICB |
This project aims to improve palliative (end of life) care for patients in Warrington and Halton. It identifies patients with palliative care needs who either attend the Emergency Department or Same Day Emergency Care (SDEC), or who are admitted to hospital. Clinicians can then check whether these patients have a Personalised Care Plan (PCP) in place that reflects their care preferences. If a PCP is not already in place, and it’s clinically appropriate, staff can support the patient in creating one.
|
2024 |
Ongoing - annual review |
Warrington and Halton GP data |
Patient Identifiable |
Warrington and Halton |